Description
Discover a unique exploration of chronic illness in 'Floppy', a heartfelt narrative that merges humor with the challenges of living with Ehlers-Danlos syndrome. This brand new trade paperback, published in 2023 by Red Hen Press, tells the captivating story of ten-year-old Alyssa, who receives a diagnosis of Ehlers-Danlos syndrome, a rare genetic connective tissue disorder. Determined not to be defined by her condition, Alyssa navigates her youth while neglecting the physical realities of her health. Fast forward twenty years, and Alyssa faces the dire consequences of her past choices, including chronic pain and a challenging career in a library. The book invites readers into Alyssa’s world as she unravels the complexities of her condition, her struggles with sensitivity, and the importance of acknowledging one’s own body. Embrace the joyful yet poignant journey of self-discovery, resilience, and healing in 'Floppy'. Ideal for those searching for insightful chronic illness literature, this book brilliantly articulates the importance of listening to one's body. Shipping is free on this item, with delivery expected in up to 6 weeks. Once your order is placed, it cannot be cancelled. Condition: Brand New; ISBN: 9781636280974.
Note: Shipping for this item is free. Please allow up to 6 weeks for delivery. Once your order is placed, it cannot be cancelled.
Condition: BRAND NEW
ISBN: 9781636280974
Format: Trade paperback (US)
Year: 2023
Publisher: Red Hen Press
Description:
One of the first books to explore the emotional landscape of living with Ehlers-Danlos syndrome from a patient’s perspective; a playful story of falling down, getting back up again, and realising you should have gone to the hospital sooner.
When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she’s finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife’s mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like?
Note: Shipping for this item is free. Please allow up to 6 weeks for delivery. Once your order is placed, it cannot be cancelled.
Condition: BRAND NEW
ISBN: 9781636280974
Format: Trade paperback (US)
Year: 2023
Publisher: Red Hen Press
Description:
One of the first books to explore the emotional landscape of living with Ehlers-Danlos syndrome from a patient’s perspective; a playful story of falling down, getting back up again, and realising you should have gone to the hospital sooner.
When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she’s finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife’s mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like?