Description
Dive into the compelling journey of Alyssa in this groundbreaking tale that intertwines humor with the stark realities of living with Ehlers-Danlos Syndrome (EDS). This playful yet poignant story explores the emotional landscape of chronic illness, offering readers a unique perspective on resilience and self-acceptance. As a young girl, ten-year-old Alyssa is diagnosed with Ehlers-Danlos syndrome, a rare genetic connective tissue disorder. Determined not to be seen as 'too sensitive,' Alyssa navigates the complexities of her condition but soon discovers the consequences of neglecting her health. Fast forward twenty years; she must confront the intertwining challenges of chronic pain, a job in a library that doesn’t quite fit, and the troubles of her wife’s health. As her body begins to betray her wishes and her life unravels, Alyssa embarks on an emotional journey of self-discovery. This captivating tale not only sheds light on EDS, but it also prompts us to reflect on the importance of listening to our bodies and understanding the true essence of homecoming. Perfect for anyone seeking to understand the intricacies of chronic illness, this novel is an essential addition for readers interested in personal narratives about health, resilience, and identity. Explore the ups and downs of living with Ehlers-Danlos syndrome through Alyssa's eyes and celebrate the journey of getting back up again!